She was diagnosed at the end of August and died towards the end of the following June. In all of those terrifying months, I worked on exactly one professional project. I lost my job at the hospital, but I didn’t want to lose my business too. The year before, my photography business had been more successful than it had ever been. I thought that I was on my way to making it as a local photographer, and then that summer she got sick. The only client I kept was the dance studio where my kids were also students. She had…


The Braids

Her hair had always meant a lot to her. The only blonde in a family with dark heads. People talked about her fair hair from the moment she was born. Relatives, family friends, strangers; all had something to say. She knew that her Iranian great-grandmother, the one she was named after, had wished for a blonde grandchild when her son married an American wife.

Her head was sensitive though, so as proud as she was of her hair, she hated to brush it. She and her mom went through rounds where Mom insisted they brush it and others…


August 2018 our first day of the “school” year (we homeschool) happened and shortly thereafter our whole world changed. . The only thing out of the ordinary about her that day was that she was especially clumsy, but she is my most clumsy child so it wasn’t remarkable. She also confided in me that she had peed in her pants on the way to the toilet a couple of mornings in a row. I dismissed that as well, thinking she had overslept or had a lot to drink the days before. …


The First Panic Attack

My child had been diagnosed with terminal cancer, a brain tumor that no child survives. She had been through the treatments to prolong her life. She had tried an experimental vaccine to save her. And now, we were facing the end. For many reasons, I had missed the perfect window of time to take her on her Make a Wish trip, and I was now faced with going with a much sicker child. A child under hospice care. My husband and I alerted friends and family. Informed them all that our daughter would need prayers and…


She was hesitant about transferring between chairs. The comfort of the wheelchair arms on either side of her, the knowledge that she could be rolled anywhere she needed to go without effort, the fear of falling during transfer; there were so many reasons to stay in that chair. But her mother was constantly worried about the pressure on her skin, afraid she’d get sores, and also a little bit hopeful that one day, the tumor would be gone and she would be able to walk again and if she didn’t keep her muscles up by at least transferring several times…

Michelle Nadari

A woman who knows life isn’t fair, and that her living children deserve the best lives possible.

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